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Friday, March 09, 2012

Last Sunday

This past Sunday after church and one of those "God-incidence" lessons again, Jhinel drove us down to Lake Worth.   We visited with Jennifer (my eldest), her man, Jason, and my two BEAUTIFUL granddaughters, Alana Lynn (5) and Gianna (7 mos).  We had a lovely visit and even went downtown for ice-cream and some window shopping.  I didn't even care that I had that ridiculous looking walker with me (please excuse my see a lovely stool that would be "perfect" for Angie's vanity in the window of a consignment shop.  It was out of my planned budget, but so pretty, that I would have paid full price if I had it.  Even after negotiating, it was still "out of my budget"  As we were walking out, a tad disappointed but with the belief that we could find one at the price that I wanted, the clerk offered to call the owner.  AND that's how Angela got her sweet stool for $30.00.  Sometimes you must be willing to walk away, and risk losing what you "want".

So, at some point, Alana realized that Jhinel and Angela and I were going to "nana and papa's" for dinner.  She begged to come along, "please gramma can I go to papa's with you? can I pleeeezzzzz?"  I was so glad that she remembered them, and that she was so excited to visit. (I'm told that both Dad and Bentley survived, but I haven't talked to either one since Sunday.  hmmmmmmmm...)  Later Alana would beg again, to come home with me.  This one didn't work out so well. Nonetheless.....

It was such a beautiful day.

(Blessed and grateful)

Such a Beautiful Woman......

I was re-reading some of my blog entries recently last week.  I was especially struck by the ones when Jhinel was accepted to college and leaving home.  How long ago that seems, especially given the changes in my girl.  In some ways she's still a "momma's girl"; in that she is often mindful and helpful; If she's in town, she accompanies me to church just because she knows that it brings me such joy, and yet, she is definitely a woman coming into her own, who makes decisions about life and has opinions about the world.  I love spending time with her; "lunch" and conversation. 
She's a lovely "big sister" whether Angie understands this yet or not.  Though recently Ang did comment after a visit, that she (self) is "spoiled."  (She's not, but I'm glad that she recognizes that her sister enjoys hanging out with her and taking her out.)

I'm His favorite, I tell ya!



No Caring Bridge

I intentionally do not have a Caring Bridge blog at this time (several of my friends have both. - one blog is quite enough for me for now.)   My  reasoning may be flawed; but in my mind, the CB blogs tend to focus on the medical issue of the author, whereas I tend to think of my cancer as just one more piece of my story.  But that means that sometimes you may be "bothered" here with information, stats, and updates relating to multiple myeloma and kidney dialysis.  I continue to think of myself as "living with", even as I witness the debilitating effects of my disease/s.

Living it one day at a time and grateful for each!

Friday, March 02, 2012

"So Dawn, What Has Really Has Been Going on in Your Life for the Past Two Years (ish)"

This is the one and only "official" update on the details of my absence from blogging.  The one time in my life that it actually hurt too much to write. This was written in December, 2011, I am posting March 2012:

My faith has been challenged beyond what I thought possible.  Last year I celebrated Christmas (2010) in the hospital.  In fact, I spent six weeks and then another two.  I  haven't been as active on this web site since and here's why.

Beginning in late June of 2010 and for almost six months, I'd sought relief for excruciating pains (on the proverbial 1 to 10 scale, a 13),accompanied by horrendous fatigue and other symptoms.  Two hospitals, a walk-in emergency clinic, and two doctors told me that they could find nothing wrong.   Actually the last doctor stated that I was depressed and had scoliosis.  He ordered an MRI and gave me pain pills and an antidepressant.   Both were incorrect diagnosis.   When the severe rash started, he gave me a referral for a dermatologist.  By this time I'd left my job and my 16 year-old daughter and I had moved in with my mother.  Even though the doctors couldn't find a cause, my health was rapidly declining.  I could barely walk and my breathing had become quite labored, For over a month, I'd  had no appetite, when I forced myself to eat it wouldn't stay down......

On December 2nd, I drove myself to the hospital.  And was admitted.  Within minutes ACCURATE diagnosis were being made.  That night, I was diagnosed with severe anemia and was advised that my kidneys had shut down.   The next day, I was informed of the real culprit - multiple myeloma.  A rare and  incurable cancer of the blood plasma.   The irony that I continue to struggle with today is that a simple blood test is the diagnostic tool, and had my diagnosis come sooner, I would not have lost use of my kidneys.  Obviously, for the last year we have been aggressively addressing this cancer and have encountered many joys and disappointments along the way.   Hemodialysis, is one example, it is an exhausting treatment which I get at a dialysis center three times per week.  My life revolves around my treatment schedule.  As much of a pain that it is, it is one of the reasons that I continue to be alive. 

Shortly after my discharge from the hospital, we learned that my cousin's son had been diagnosed with a lymphoma.  His battle with this cancer was relatively brief, and at 36, Mikey passed.  My heart has been broken with sadness for his beautiful momma.

What I thought was THE  worst came at the end of August, I was driving home from Tallahassee, FL. I had  taken my girl and her new papasan chair back to college.  Shortly before arriving "home" I received a phone call, to call my girl back as soon as I reached my destination.  It didn't make a lot of sense but  .....   what the heck!  When I pulled into  the driveway and called her back, I understood immediately why she had been so stubborn about not telling me as I was driving.  My kid sister had gone away for the weekend with her husband.  She was now in the hospital in a coma. They didn't know how long she would live.   NOW the depression would begin.

A day or so later, a friend came and picked me up and took me to Ft. Myers to be close to my beautiful sister.  At some point it was decided to take her off life support.  It was a miracle that she continued to live!   She was eventually transferred to a private hospital closer to her home, and  between her husband and our mom someone was with her but for a couple of hours at night. Then came the worst news yet.   Momma had come home for a couple of days when the phone call came........My brother-in-law was dead.   Our beloved Chad...just didn't have the strength physically and emotionally to continue.  I believe that he died with a broken heart.

As difficult as this has been for me personally, It has been so much more for their parents and children; to my own 16-year-old daughter, Chad was "like a father."  She spent many weekends or vacation days "hanging" out with their family, she has struggled so much, but thankfully is finding some relief in therapy.

When I quit smoking in September 2009, I was the happy quitter!  I HAD PLANS for my new, healthy life!!!!  I started working out and was walking 5K's.  I planned on running a 5K for my 51st birthday.....ha!   "MY" plans.  Today, I walk with a walker or a cane.  I must "rest" much too often for my liking.

Today, my prayers are simple.....healing for Holly and for us ALL and for God to have his will in my life, even as I struggle with my own purpose in his plan.  I pray for strength for my momma who lives near the neurological center to be with my kid sister.  



So, that's the nutshell version.  I'm happy to entertain questions.
If the thought should cross your mind, all prayers are appreciated.  
Dawn

Thursday, March 01, 2012

Philisms

Today I had my typical Thursday morning "appointment"  (hemodialysis).  My nurse/tech is his usual cheerful and "too cute for his age" self.  Bantering with me or perhaps simply for his own entertainment as he prepares to infiltrate my body with those ever so delicate "needles"   (ya right!)

Somewhere in the nonsense I hear him comment, "ya gotta have goals..."  There was a time when I would have laughed out loud.  This morning, I practically choke on a slightly forced smile.   "REALLY? Why do I have to have goals anymore?"  This is what I'm thinking but the words that come out of my mouth are more along the lines of, "yeah, my goal these days is just to get out of bed in the morning."  (Some days I don't.)  As the irony settles in my brain, I just say, "where's my book?!  I've gotta write this one down!!"  And I really do laugh.

So.......Phil promised  to work on his "-isms."  And I promised that he was gonna end up in my blog today.  He's probably working on them even as I blog......

Sunday, February 26, 2012

Things I Want My Kids To Remember

  • Numeric palindromes
  • TTMAB
  • TIAB
  • Manners
  • That a lot of times tears are simply joy overflowing.
  • good mom's embarrass you AND make you do things that you don't want to.
  • sometimes I'm not a "good" mom.
  • (Jhinel) the night that you found out that you had been accepted to FSU!!!
  • ".........shhhhhhhhhhhh, don't tell your sister"
  • visit your grandparents and call your momma.
  • say "I love you" as often as you can.
  • Hugs and kisses are awesome!
  • Be careful of what you put out there on the WWW.
  • (Jhinel, Angela, Jennifer)  You are so beautiful. And true beauty shines from within!
  • You can't get by on cute forever, so just stop it right now.
  • I lied. TALK to strangers!  It's good for you to stretch your social skills, and how else are you ever going to meet new people and make new friends??
  • Always remember "the buddy system",  it's not just for kids!
  • I love you.
  • Jesus loves you far more than I can even imagine.
  • "Someday you'll be best friends"
  • If God had asked me to make a list of what I wanted in children......It wouldn't have even come close to the ones that He gave me. That's why I think I'm His "favorite."
  • Praise God in ALL things, even the ones that break our hearts.  I believe this!  He never promised us that living for Him would guarantee wealth or a life without sorrows.  In fact, In the Word we are told that because of our faith, we will suffer.  God doesn't cause bad things to happen, but sometimes He does allow them.  It is not our place to know why, it is only our place to trust Him.  (read Job).  God's ways are bigger than ours.  Praise Him, even when it hurts. 
  • God will never, ever leave you or abandon you.  
  • Faith is not a feeling and feelings don't define our faithfulness.
  • Worship is about honoring God, it's not about making YOU feel good.
  • Some of these you may not "get" yet.  (print it out and tuck it away for later)
  • I still think that it's a good idea to write out a "wish list" of what you desire in a mate at least once a year.  Jhinel, New Year's might not be such a good time anymore, maybe St. Valentine's Day?  It's only necessary to include the "must have's" and the "deal breakers".
  • Never, ever drink and drive. Not even "just this once" or after "just one."  Never, ever ride in a vehicle with someone who has been drinking.  Not even "just this once" or after "just one."  If you need a ride.  Call me, I'll be there!
  • better yet, never drink????  (Hey, I'm your momma, what do you expect?)
  • Don't kiss a man before the wedding ceremony.  (Unless it's your grandpa Krupa)
  • It's really expensive to get tattoos removed.
  • "Yes, when you turn 18 and I no longer legally have that authority over your life"  is a really creative way to say, "NO" to your children!
  • Go to college!
  • Find your passion!
  • If you work where your passion/love/heart is, you'll never "work" a day in your life.
  • Don't use "plastic."
  • Cars and houses are the only things you should ever put on credit.  Try to pay cash for those if you can too. 
  • Take Dave Ramsey's Financial Peace University class.
  • Now you are beginning to CREATE your very own family. (friends are part of your family.)
  • Change your windshield wipers every six months.
  • Make your bed every day, even if the rest of your room is a mess, it STILL looks good!
  • If you're "not sure", ask yourself what you would tell your own daughter to do if she were in the same situation.
  • If you SMOKE I will come back and kick your a**!!!!!! 
  • "Hatching" baby chicks
  • more will come.

My Little Black Book...

Just this day I found myself jotting in "my little black book."  Repeatedly!

No, "my little black book" is not a directory of phone numbers of attractive men - darn! I thought 50 is supposed to be a woman's "prime" - just my luck!  "My little black book" is my book of notes to myself that I always carry with me.  Often ideas for blogs are written, more often lately, it's my "to do" and grocery lists.  Not all of my notes make it to the page.  One day I was in an ice cream store and pulled my book out as we were ordering.......my daughter, "uh oh-ed" as she explained to our server what that meant.  I think sometimes it embarrassed her that in the middle of ANYTHING I could stop and pull out that book!  (That particular time the comment had to do with something he said about superman ice cream.)  Anyways, I'm excited!  I feel as though my life is slowly but certainly coming to a new norm.  Part of my "writer's block"  has certainly been my grief over the last year plus.  Part of it is that I know that to be real, I'll have to write some of it and parts are still too painful.  Some details will never make it to this forum, which is as it should be.  For today, I'm just so happy that "my little black book" was so active! 

Enjoy The Blessings!

Saturday, January 21, 2012

Frog Legs Anyone???

Tonight it was a night "on the town" in beautiful Fellsmere, FL.  Angela volunteered at the annual Frog Leg Festival as did many from the tennis team.

My fair food of choice is Italian sausage sandwich with fried onions and peppers and NOT fried frogs legs.  Unfortunately, my tasters have been "off" for  many months (meds perhaps?) and once again eating was difficult. 

Without a doubt, the most entertaining part of the evening was not the "performer from Nashville"  but Angela's adventure with the frog.  She is terrified of them.  In one photo I couldn't decide if she was posing to kiss it or to take a bite!!!  It was worth the $20.00 to watch her overcome her fear/phobia.

I took the cane and not the walker and although I was slow, I was there for almost two hours!  (HUGE!)
(pain pills were involved.)

Sunday, January 16, 2011

Consider This a "Kick in the Arse"

I've been wanting to get back to journaling on this blogger account for a couple of months now.  Of course I've aquired several new excuses to justify the delay.  Today that stops.  I can no longer use the "I'm too busy" rationale; (however I do have a tendency to fall asleep ON the computer these days!) 

I've several DRAFT pages which will help me to fill in some of the blanks. For now, I'll just thank those who took time to pray, call, send cards or gifts and who visited while I was in the hospital.  God has shown His grace and mercy through you!

Thank you.

Sunday, October 10, 2010

The Good Things!

It was sometime about midnight when the phone rang.   Those who know me don't even bother to call anywhere near that late.  I was in bed.  I was not asleep yet.  The late ringing wasn't a disturbance, I almost smiled as I reached for the phone.  Hoping.

"Hello"
A far-away sounding voice replied, "F-L-O-R-I-D-A-S-T-A-T-E.  Florida State, Florida State, Florida State, WOOOOOOOOOOOOOOOOOOOOOO!"

It seems that I miss her more on game nights, it's not nearly as much fun for me without her laughing and crying and screaming and dancing and pacing.  She'll never know just how much that midnight phone call meant to her momma.  The fact that we beat UM 45 to 17 was just the icing on the cake, WOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!

Sunday, August 08, 2010

The Day that Uncle Chad Found "Papers" in Angela's Make-Up Bag...

And what was he doing in her make-up bag anyways???!!!


(just in case you're wondering, they are Sephora brand blotting papers and her make up bag is exactly where they should be!)

Sunday, May 30, 2010

Fifteen....


is beautiful!

Friday, March 12, 2010

Spring Break 2010

This is a single mom's version of a "VACATION" day:
take Jhinel to dentist; while she is getting her cleaning/check-up, Starbucks run - cause I know this one's gonna be "a doozy"; fill up car and check air in the tires; pick up girl from dentist; auto parts store for new windshield wiper blades; Walgreens for passport photos; Dad's for a kiss; county government office so Nel can submit her passport application. THEN wash car; lunch; Jhinel to doctor; post office; me to oncologist; county animal care and control for cat licenses; home to pick up Angela and Alana; Dad and Nancy's for dinner; grocery store so that Nel and Alana can bake a pink cake before Jhinel heads back to college. I can ONLY take so many of these "days off" - LOL!!!


Hoping that you see the blessings in THIS day!

Wednesday, February 03, 2010

Datenight 01/31/2010

NFL Probowl...... and yes, her man, "Peyton" was there!

Thursday, January 28, 2010

Miami - this Sunday!!


I won't need a TV for the NFL Pro-bowl and Angela can wear her Christmas gift as well......


Thursday, January 07, 2010

AVKD

Ang and I had the most interesting discussion about the literature of William Shakespeare and evolution of the English language.  Actually she did most of the talking.  The conversation was wonderful.  The fact that it was with MY baaaaaaaabeeeeeeeeeeeee is kinda freaky!

God is Good. 

Happy January!

Yeah, I did something really bizarre for me last week. REALLY. The kinda thing that makes my girls shake their head in bewilderment and say, "who's taken over mom's body cause she would never ever do that!".

I bought a television.

This is unusual on several accounts.
First, I dont particularly care for or watch TV. Yes, I love my news shows, Marlin's baseball and Seminoles football, but even so, I can become a poor steward of time ---fancy way of saying "couch potato".
Secondly, this is the type of purchase that I'm inclined to spend months researching and budgeting in advance. I almost never impulse buy, except at the grocery store.
Finally, I've never, ever, ever bought a television. I actually have a TV that I acquired during a divorce, I wanted the grill, I got the TV (ha!) - We use this for "movie night" to play CD's and DVD's and for the wii system.

So, I still had not found a suitable place to watch the gator bowl. I was considering some local sports bar/restaurants but would rather not take my girls into that environment. So, yesterday I finally decided that I would pick up one of those HD converter boxes for my TV. I ended up walking out with an actual new television. I totally messed up my budget but I can watch Bobby's last game from the comfort of my own living room. It will be so nice to watch a game with Jhinel again, obviously she's home on winter break. This afternoon there will be loud laughter, pacing, lots of screaming and jumping, hopefully not too much nail biting. There will probably be tears as we watch the end of an era.  We will teach a three year old the proper way to scream at at football game and the 'nole chant.

Yeah, I messed up the budget with this purchase because I didn't account for a new TV this month. I can "justify this purchase" because the SALE price really made it doable, also I save money by staying home today and I didn't have to buy the box, etc., etc. (see how that works?!)
Instead of "buyer's remorse" I'm filled with excitement, THE TRUTH IS THIS..............I've saved the amount of MORE than two TV's by not smoking for over three months!!!  How cool is THAT!?

T.V. will come in handy during baseball season too.

Tuesday, December 29, 2009

Smile. Smile. Smile!

It's 10:30 p.m. on my coast. In my living room are four college girls, a kid sister and a wii. They are all in PJ's, I hear their laughter. I am whelmed over with joy, peace, happy.

The last time that they were all together was their high school graduation and "little krupa" was considered a nuisance. In just a matter of weeks, she's grown taller than two and has physically matured in a way that none of the others were prepared for (yet). Tonight she is invited to be part of their group. I am glad to have them home, even though the visits are brief these days.

THIS is the bucket list.

Wednesday, December 16, 2009

They Call it "Hump Day"?!

At 8:00 a.m. this morning I was quite thoroughly enjoying one poached egg with a toasted slice of fresh rye bread (seeded, of course) accompanied by Susan Boyle's beautiful voice (don't even ask, just go buy the CD).  The perfect way to start a day.
Except that my day had actually started at 5:00 a.m. when I threw on sweats and sneakers and walked 4 miles to the beach and back with Wally.  Life is good.  God is good!!!

P.S.  Michael G. from my hometown noted that at 6:00 a.m. this morning he was putting oil in the snowblower!  hehe

Friday, December 04, 2009

"Totally Random"

  • Glad that I got to attend a game that Bobby coached
  • Proud of my girls
  • Procrastinating writing an updated version of my testimony
  • Hoping that I don't have an accident today and have to go to the hospital (cause i really really really need to go underwear shopping)
  • Waiting for myNel to get home and decorate the Christmas tree (she asked)
  • God is good